Tuesday afternoon (from Tammy)
The brain tube is out. We just took Jack for his first wheelchair ride to the front lobby which has a huge train display. He had just been in the treatment room, getting the drain out of his sweet little head. We had 30 minutes before the nurse said he needed to be hooked back up to the feeding tube, so the neuro nurse practitioner, one of Jack's favorite people here, said get this boy off this floor and take him to see the trains. So bloody hair and all we took him down to the lobby. He liked the wheelchair ride, a bit groggy from the morphine due to the procedure, but he liked it we could tell. He will enjoy going back tomorrow. Now that he is not being monitored for brain pressure we can move him around a bit more, and tomorrow the pt will come and help us get him walking.
The neuro nurse practitioner also said that the rep. from the children's rehab facility here in Dallas would be by to speak to us tomorrow. They will evaluate Jack and decide if he can do outpatient therapy for speech or if inpatient therapy would be best. The hospital will keep us here only until Jack's feeding tube can be taken out, when he can eat. Could be another day or two, then we would either come home, or Rob and Elaine would take Jack and I to the rehab where we would live for up to 6 weeks.
This was not easy news for me to hear. As I would love to come home and hug my kids necks, and pick them up from school when they are sick, and help them shop for teacher appreciation gifts...I ofcourse want what is the very best for Jack so it could be a while until we get home. Keep your posts coming.
p.s. The neuro nurse practitioner, kathleen, said she had never seen a child be so still for the procedure that Jack just had. Rob held him and was able to comfort him. They had the music therapist in their with him singing, the child life specialist in talking Jack through it all and the medical team. Boy, Jack is such a blessing to us.
5/3/2005 4:03 PM
The neuro nurse practitioner also said that the rep. from the children's rehab facility here in Dallas would be by to speak to us tomorrow. They will evaluate Jack and decide if he can do outpatient therapy for speech or if inpatient therapy would be best. The hospital will keep us here only until Jack's feeding tube can be taken out, when he can eat. Could be another day or two, then we would either come home, or Rob and Elaine would take Jack and I to the rehab where we would live for up to 6 weeks.
This was not easy news for me to hear. As I would love to come home and hug my kids necks, and pick them up from school when they are sick, and help them shop for teacher appreciation gifts...I ofcourse want what is the very best for Jack so it could be a while until we get home. Keep your posts coming.
p.s. The neuro nurse practitioner, kathleen, said she had never seen a child be so still for the procedure that Jack just had. Rob held him and was able to comfort him. They had the music therapist in their with him singing, the child life specialist in talking Jack through it all and the medical team. Boy, Jack is such a blessing to us.
5/3/2005 4:03 PM
Comments
Thank you, Lord, for every step towards Jack's recovery.
It is truly a blessing to witness God's love being poured out by his people, and seeing the faith of the Marcelain family giving such a powerful testimony.
I hope to see Jack again before he goes home -- I can't help but be drawn to such a brave little boy with so many friends! Our prayers are still with you, and thanks for all of the updates.
Blessings,
Sharon Winkler
Shellie
Tammy & Rob & Elaine, I know this is not easy for all of you and we are praying for your strength. Let us know if there is anything we can do. We love you guys and just want you to be able to come home all better!
Love, Robert & Jessica
Holly Brant
Love to all!
Gwen
Thank you so much for giving us updates on Jack. I can't wait to check the computer everyday to hear more news.
I pray God will give you strength everyday. I pray Jack's brain will heal completely and he will beable to talk to you soon.
Your e-mails are so positive, I know everyone who is working with Jack in the hospital is seeing Jesus through you. Not only is Jack blessed to have you as parents you are blessing to the people who work in the hospital.
In Christ,
Valerie Hilliard
I'm not sure there will ever be enough words or time to thank you all for all that you have done. In the lowest of times we only have to come here and feel your love. Know that it has carried us through many times.
To be a part of such love is so amazing it really opens your eyes to the big picture of what God wants for His children. You have given us a glimpse of heaven and I will never forget it, why more people wouldn't want to be a part ot this is beyond me.
We just gave Jack his first shower and I think the water may have woken him up a bit. He tried taking several steps. They were wobly, uneasy steps but they were steps and we were thrilled. Now we would like to see that smile back.
Now that we are no longer in ICU we are able to put cards up on the wall so we spent some time doing that this morning. We got tired before they were all put up. That is yet another display of all the love we have recieved.
We have heard wonderful things reports on We are the Sermon. I'm not surprised. You've been pracitcing all week.
Much love,
Rob Marcelain.
We are greatful to God and all who have been praying for Jack and his family. When Jack recovers and returns to Abilene, and I get back from Dayton in mid June, could he come to our house and see my small train setup?
May God and his blessing be with you in his recovery and be able to return home soon!
God Blessing,
Phil and Micki